At the age of 27, I was diagnosed with a rare condition called Exertional Compartment Syndrome. Your lower legs/calves have four compartments with the fascia that wraps around all of them. What happens with my condition, is that the pressure in all four compartments get way too high causing them to swell, which leads to the fascia cutting off the nerves/circulation. When this happens, my ankles, achilles’, and foot burn as if they’re on fire, then turn numb and I have no clue where my foot is stepping. My condition has gotten so bad, it is to the point that I can’t even walk a quarter of a mile without severe pain and then having to stop what I’m doing and rest until the swelling goes down. It has gotten to the point where I can no longer exercise, and enjoy even the little things in life. Last year we went to Niagara Falls and halfway through the day, I to stop and wait for someone to bring the vehicle to me, and leave everybody else and head back to the hotel because. I would love to be able to enjoy all the simple things we take for granted, and enjoy life again.
As of now, there are not very many treatment options available. One treatment is a Fasciaotomy, where they go in and cut the fascia in both legs and you are laid up for a couple of months unable to walk. Unfortunately, this treatment option has a very low success rate, in which patients go through the same surgery multiple times with no success. The doctors that I have seen, will not even consider the surgery or no of any other doctors that would agree to it, because of the low success rate and pain level for the patient.
There is a doctor that has discovered a new treatment option that has over an 80% success rate by administering Botox into the various compartments. One of the doctors I have been seeing, has volunteered to try it out on me, but I unfortunately cannot afford it. Treatment usually involves 3-6 rounds of Botox, with a cost of $4,000 to $5,000 for each session, so I would like to raise $20,000-$25,000 to cover those expenses. Insurance will not cover it due to it still being considered an “experimental treatment”. I unfortunately cannot afford it myself. I have worked a government job since I graduated high school, even working through college. After graduating college, I have been strapped with $75,000+ of student loans along with my regular bills, so I have little to no extra money to put towards the injections.
I would include a picture of the bill, but I have no bills. The Botox doctor will not give the injections until I have the money to pay for them, so I am basically stuck until I can afford to pay for them.
Anything you could contribute would be greatly appreciated, every little bit helps. I would just love to be able to get back to normal and do the everyday things so many others can enjoy. Thank You!!