Hello. My name is Roshawn Bedford, also known as MizzSkullyB, and I have Sickle Cell Anemia SS. For those who don’t know, Sickle Cell is a common, hereditary blood disorder that causes excruciating pain at any given moment, making it extremely difficult to nearly impossible for some carriers to hold down a steady job, such as in my case.
I just made 38 years old on June 17th and am somewhat embarrassed to say I live at home with my mom, but not for the reasons one might think. I moved back home to Houston from Cali in 2016 to help my mom care for my father, who passed that year due to colon cancer, as well as my fully disabled younger brother, who later died from complications of his epilepsy 3 days before Thanksgiving in 2020.
I’ve been trying to save for a nice little vehicle since 2020 but life just… keeps on lifing everytime I get close to my goal.
Just within the last year I’ve been diagnosed with multi-organ failure of my heart, lungs, and kidneys. That’s on TOP of the numerous bloodclots that were already over 80% of my body when they first diagnosed me with them in 2007. Not to mention the Neuropathy AND Gout I was also diagnosed with in 2021. My kidney disease got so bad I’ve been close to death TWICE since 2022. And just as I was nearing dialysis levels, my doctors decided to have me do monthly transfusions, which have definitely helped a lot.
That said, between my daily life, these transfusions now, and drs appts literally almost every other day (sometimes even multiple ones in the same day, in different locations) I NEED MY OWN VEHICLE. My mom has a car that I pay the monthly insurance on(and sometimes the note too when she’s behind like now), but she doesn’t like to let me drive it. But even if she did, I still need my own regardless. Just like Billie Holiday sang, God Bless the Child Who’s Got Their Own! Especially now that my mom’s getting sicker these days also. Due to her fibromyalgia and a host of her own illnesses, she’s not even suppose to be driving at this point, but she still does her best to get me to every appointment and it’s really starting to take a toll on her, not to mention our relationship. We have a running serious joke that whoever is feeling the “best” that day is who looks after the other, but it would be so much easier with my own vehicle.
PLEASE HELP ME TO HELP MYSELF. I don’t look it, but I’m very ill, and all I want is to be able to care for myself and my mother the best I can without also being a burden on her.
Thank you for taking the time to read my story, and thank you in advance for anyone willing to help. It would truly be a much appreciated LIFECHANGER.
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Thanks again and take care!