My name is Cindy and I am writing to you on behalf of my son Gary Lee. Gary Lee was diagnosed with Sporadic ALS on December 19, 2016 and his disease has progress rapidly. The life expectancy after being diagnosed with ALS, also known as Lou Gehrig disease, is 2 – 5 years. I know you receive many letters asking for your help. My hope is that I may persuade you to help my son.
Six days before Christmas my son, Gary Lee, received his ALS diagnosis. This news was devastating for our family. My son had just married the love of his life, Katie at the end of August. Within three months after their wedding, they discover their lives would not be what they planned for. Gary Lee and Katie had to come to the realization that the life they planned for was not going to happen.
This is not the first time we have had to deal with ALS in our family. My paternal grandfather was diagnosed with and died from ALS at the age of 66. Because of this family history, Gary Lee worried that he may have the Familial form of ALS. His doctor ordered a complete genetic panel to determine the form of ALS he has. Gary Lee has a sister with three children and is concerned about them. It was a relief to him that the tests came back as the sporadic form of ALS. I don’t know if I really believe these test results.
I watched my grandfather die from this terrible disease and I am watching it take my son too. I may be grasping at straws, but I am desperate and feel so helpless in his fight. Gary Lee’s bride, Katie, is worried about being able to financially afford all his medical expenses; doctor, appointment, medicines, special equipment, 24/7 home care, etc.
My husband and I want to help, but we are not financially able to do enough for our child. I know you have heard this before, but please consider helping us.
Thank you for taking the time to read my letter. I hope so strongly that you will be able to help us. For my son, family and myself I thank you for giving this your consideration.
Cindy (Gary Lee’s mom)
Gary Lee with his nieces, Kylee and Ella, and new angel Logan.
The first time I held Gary Lee I instantly knew that God lives and He created us, and that He supports and blesses us. I couldn’t believe how much I loved him. I am actually getting a little teary eyed. I just couldn’t believe that he was all mine, I cried and said, “Welcome to our family little one.” I whispered to Gary Lee, “I will protect and love you forever.”