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Last Updated: November 26, 2020

SLE medication

Hello,

My name is Jelena, i′m 20 years old and i′m from Serbia (Belgrade)

Since my 14th year I lived a normal life, I went to school, had many friends, I also had a lot sport activities including kick box, volleyball, football… But then it all started to change when I was diagnosed with Systemic Lupus Erythematosus (SLE). When i first gotten in a hospital, the main doctor told me that I was lucky for arriving in the last moment, my health condition was so bad that the doctors taught that i could die any moment. When the doctors first told me that I have Lupus, I didn′t know what Lupus is, they told me that Lupus is an autoimmune disease, where the immune system attacks it′s own self, that means that it can cause damage on organs, skin, joints, kidneys, lungs, brain… Ant that it can′t cure. As an 14-year-old girl, I didn′t know what to expect, but I knew that I had to fight for my life. I had a lot issues, I was in big pain, I haven′t been able to walk by myself, I ve gotten weight that was a side effect from my corticosteroid therapy, but then, for an 14-year-old, the biggest punch in the face was when my hair fall out, I cried for days, but then I decided to fight stronger. Many days in the hospital, many different medications and therapies helped me to fight the disease and win the first round. A year later, when I thought that I′m an absolute winner, Lupus attacked me. I vent to my doctor, and I′ve done analysis with biopsy that shown that the Lupus attacked the kidneys, I was again in hospital for 2 months, the attack was so tough, the medication was aggressive I turned into a ghost, I was′n able to eat, walk, sleep… As my fight with SLE continued, I started to lose hope that one day I could live a life-like I used. Congratulations Lupus, 1-1. But then it all started to go better, I finished high school, gotten my first job, meet my boyfriend, everything was normal, i had a little pain in my joints, but i was used to it. For 3 years I was in clinical remission, who′s laughing now, ha Lupus? Again, i thought that I′m a winner, but no, I wasn′t. Lupus had again attacked my kidneys, i′m again in that stadium that i can barely walk. I lost my job cause i can′t work, the financial situation is bad and i can′t afford medication that could help me with my fight. The medication that is necessary  for my kidneys is caled MYFORTIC (mycophenolic acid) in Serbia it cost 33.200 RSD (334 USD – 282 EUR) And one box of that medication is enough for my monthly therapy. 

If anyone could help me throw my fight, i would be so thankful. I′m a fighter and I promise not to give up, I still have a lot stuff to do, but i really do need financial help for my therapy and i know that there are people who can and who want to help. If you are one-off them, please donate me ass much as you can, every help is welcome.

My PayPal link is https://paypal.me/visekrunaSLE?locale.x=en_US

Filed Under: Medical Bills Tagged With: EU

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