I’m reaching out to you because I’ve started a Campaign for Surgery and Treatment of a rare disease (Apraxia of Eyelid Opening associated with Blepharospasm).
Apraxia of lid opening is a condition in which patients who have otherwise normal eyelids have difficulty opening the eyelids.
The specific causes of blepharospasm and apraxia of lid opening are unknown, but these two conditions coexist in some patients and can be difficult to treat.
It is important to make a correct diagnosis, and a combined surgical and botulinum toxin treatment can be very effective.
Untreated, the conditions are visually disabling and may create functional blindness.
This cause means so much to me as I cannot continue to function without continued treatment and surgery. My Insurance has treatment limits and only covers 4 per year . I’ve paid out over $5,000, maxed out my credit cards and have outstanding loans to have some of the necessary treatments done. The funds collected would positively impact my life for future treatments and surgery .
If you could support by making a donation and then sharing with your network, It would be greatly appreciated. I know money can be tight, so please know that even $5 helps get closer to the goal ! Thank you for your kindness . ❤