Hello My name is Melissa. I started working at the age of 14 and continued until I was 36. During this time I suffered 2 strokes as a result of a violent strangulation attack from who I though was a friend and within 6 months was back to my call center job. However at 36 I was diagnosed with a rare bone disease called Avascular Necrosis or AVN for short. I am 43 and I am positive in 8 joints for this disease both wrists, knees, hips and ankles and need joints replaced or removed which because of my age and lack of knowledge of the disease doctors are resisting I did manage to get one knee replaced..but it didn’t go so well and i am now disabled. Due to the fact I worked hard for my working life I have to pay 279$ to the state of Missouri for what is called a spend down…that brings me down from my SSDI income to SSI income..however Snap benefits and section 8 still use my original income to calculate benefits so …I don’t get a lot of help from either. I have been struggling through the last few years trying to just keep going..and to be honest I am tired..tired of being in pain that I wouldn’t wish on my worst enemy, tired of going to doctors only to be told yeah no..you have to wait 10 more years though my pain doc says there isn’t more we can do, the appeals to try to get my income adjusted to try to get more benefits..and on top of all of that the only open MRI closed in my town and now where I finally do have a doc to operate at least on my wrists I can get there but the cost to stay the night and food I can’t afford it is 3hrs away and my body cannot handle a 9hr day like that. So what am I asking for..well to be honest..help to make the trip happen for the MRI would be awesome..we have priced that at about 200-250$ depending when I am able to go. But if not even that much every penny I can get that can go toward a bill lets me breathe a little easier..I don’t do anything but eat one hot meal a day and sit on my computer..I have mental illnesses so I don’t go out and really don’t socialize. It would be nice to get a small break from some of the bills so i can get some clothing that fits (I have lost 50lbs in the last 2yrs) or a cane that is covered by medicaid and medicare but no organization will order it because its a rare type and its not in their catalog. I guess all I am asking for is a breather..Each week something new comes up and I fight to get through the best I can for no reason..just that I don’t know anything else TO do. So if my story reaches you I will tell you even .50$ will let me know someone out there read and cared enough to try. Thank you very much for your time and I wish that anyone reading this stays in good health..I would never ever wish this nightmare on anyone.