On January 9, 2019 Isabella was born. She was born a month early and with many complications. She is almost four months old and has already been to four different hospitals and is in the process of getting transferred to her fifth hospital . It has been a heartbreaking, stressful, and draining time for me and my family. She has lived her entire four months in hospitals she has not been able to come home yet.
Isabella has been diagnosed with trisomy 8, tracheomalacia, lung disease, butterfly vertebrae, anemia and some other minor things.
She was born with patent ductus arteriosus which is a heart defect. She had surgery for it and everything went successful with that. She was also born with a hole in her heart called atrial septal defect, her doctors said when she is between the age of 3-5 they will probably have to do surgery to close it.
She has been on a ventilator most of her life, she can not breathe on her own. After her heart surgery they found out she has tracheomalacia. With her lung disease and the tracheomalacia, the only option was for her to have another surgery to get a tracheotomy and a feeding tube put in.
The doctors don’t know when or if she will ever get to have that removed. So when Isabella is able to come home she will be on machines and monitors.
Its only been four months and Isabella has already been through so much. You never expect as a parent when your child is born that you would ever have to go through this. It has been a very hard time in my life to see Isabella going through all of this.
Her medical bills are already over $15,000 and we still have a long road ahead of us. She’s been at Riley’s hospital in Indianapolis for about a month now. The hospital is over two hours away from home, I have a seven year old at home so I’m always going back and spending alot on gas money. I am currently not working or will be able to work once she comes home she will need care 24/7. So I ask if you can please help with medical bills, gas, living expenses, home care, and for the things she will need when she is able to come home. Thank you so much for your kindness, generosity, love and support.