Hello, I am a desperate thirty-year-old mother of an eleven-year-old kid. At fifteen years old my life turned into hell. When I went to high school like a regular teen would do, I would start bleeding out my nose and gums. One of those days, I lost so much blood that my parents took me to the emergency room. That day the doctors told me that my liver was very swollen and I needed urgent follow up with a Hepatologist. That’s exactly what my parents did. There was a lot of tests and blood work done; my liver numbers in blood were 1400 (normal for a healthy liver was only 70). Doctors were not sure of its caused, so they decided to do a liver biopsy. That was the most painful process I have had experienced. The results were not what we all expected but worst. I was diagnosed with cirrhosis of the liver through autoimmune hepatitis stage 4. It was a traumatizing experience to hear my diagnostic at such young age. In a kid’s mind, I thought “how could I get that sick; that illness gives only to people who are alcoholic.”
Furthermore, I did not get to finish high school, I had many absences due to my sick days and the depression. Even though we explained the situation to my counselor and the school principal, I remember one day at graduation practice I got kicked out. They told me I couldn’t be there since I had failed two classes. This horrible news hurt me so bad that I literally went straight to bed and didn’t come out of my room for days.
Time went by and these last fifteen years I had so many infections; some of them very painful. I remember I had skin infection once and needed to be cured without anesthesia. They will squeeze and clean deeply with gauzes over and over again and then burn them with nitrogen, pneumonia, e-coli, vitiligo, etc.
Three years after I was diagnosed, I got pregnant. My son is a real miracle. The doctors told me I have to abort the baby; it was a high risk pregnancy where one of us was not going to make it. Ignoring all the doctors’ warnings that the baby might be blind or might have down syndrome I still decided to have him. I also suffered domestic violence while being pregnant but I made it out of that; the strength of a mother is invincible. My son was born perfectly healthy and with no problems at all. I have gone to all my doctors’ appointments and have been evaluated multiple times from the same doctors, but lately it has gotten worst. Recently, I have been to the hospital too many times for many days even weeks. They have used plasma to raise my white blood cells count but it has failed. Not that long ago, the doctor came to my room with the worst news ever, “its time kiddo, its time to get a transplant.” My whole body paralyzed. I got into shock just to think that at this point I will be having 50% chance of survival. Then, the first thing that came to mind was my kid. His mom will leave him all alone and who will take care of him, he is only a child. His biological father doesn’t even call him, doesn’t help me financially, he is just not present at all. But I know I can’t give up!
At fifteen years old when diagnosed I was stage four, now it is stage twenty-six. Unfortunately, I do not have insurance, only charity care, which would hopefully cover the surgery. However, I still need $30,000 to get into the waiting list for a transplant, and $30,000 for post surgery care including medicines for year after year. I also had to leave work because I would get very swollen and looked like I have a seven-month pregnancy belly. I have no muscle mass; I can wrap around my upper arm with one whole hand. Moreover, I have lost lots of hair due to the medicines I have to take. I am currently taking eleven different medicines on a daily basis but they are very harsh, side effects also include feeling nauseous and getting many cramps. My parents cannot help me. My father makes minimum salary with no health benefits and my husband income is all spent in medicines and day to day necessities.
This is why I am asking you all good hearted people for help, it will be impossible for my family and I to get all this money together by ourselves. I WILL FOREVER BE GRATEFUL FOR ANY KIND OF HELP I CAN RECEIVE FROM YOU. The sooner I get all the money together the faster I will go into the waiting list for a liver transplant. I want to stay alive for my kid; my son needs his mom. Please help me, Thank you!