CASH TO COMMUNICATE WITH VINNIE
Vinnie has Fragile X Syndrome and is classed as Retarded. He is 5 and can not talk or communicate. Best way to describe it is like autism but so much worse. He bites his hands so bad when he gets frustrated that they are scarred and bleed.
Fragile X is a genetic mutation that my sisters (3 of us all together) all carry the gene. We are learning how devestating this condition can be. Last year I had to have a hysterectomy due to complications and will never have children. My sister C, had Vinnie and now will not be able to have more children and my other sister is disabled and will have to have IVF to ensure healthy children.
The latest news and techniques on Fragile X will be showcased at the International Conference this year in Miami, July 25 – 29th. We live in a small country on the other side of the world – New Zealand.
To get to the conference and learn about our condition and ways to communicate with Vinnie and go out and teach others about what we learn is essential as there just isn’t enough known over here to give Vinnie and us a quality of life.
Our family is broke, I look after my disabled sister and my other sister C has my mum who has dementia and Vinnie. All our money goes into their care. But we desperately need to learn about what we have and how we can help Vinnie.
Flights alone will cost us over $7000 NZD
Conference Costs $780
Hotel Costs 2000
Please help us, there are only 5 people from our entire country going and we need to learn this so we can educate others in the Fragile X community.
Thank you so much for reading this and for being the kind of people that help those who need it so much