My name is, Stephanie Wilson. Im 30 years old, have 2 young sons, Cooper and Tanner, and love life to the fullest.
Unfortunately i have neurocardiogenic syncope with seizures, and I need a pacemaker as soon as possible, without it, my chances of surviving a neurocardiogenic episode decreases significantly, and ive had over 300 in 30 years! The statistics are not in my favor without one. Every time I do have one, my heart stops, and there’s a 50% chance I won’t make it.
I know, thats an extremely long name, neurocardiogenic syncope, and no one seems to know what it is, part so here goes.
You see, what my team of doctors tell me is that my body works a little differently than others. My blood pressure is always extremely low. (92/45, is about normal for me, even though ive had a nurse panic and tell me most people were already passed out by now. She was surprised i walked into my appointment much less drove myself there. I felt fine though. At least what ive become to know as fine.) Along with low blood pressure i have low heart rate as well, which really aren’t a great combination. Every day, mutiple times a day, i feel dizzy and lightheaded, and fee like im going to black out/pass out. When this happens, i begin to lose my vision, my hearing, and my body begins to tingle to where i almost cant feel what im touching. And i try to get myself to a safe place to have my “episode.”
In middle school i began to pass out often and the doctors couldnt figure out why or what was wrong with me. Ive had every blood test done, seen every doctor i can be referred to, been to the hospital on more than one occasion, have had surgery due to being hurt while having an episode, and they still couldnt figure anything out. They said they didnt know what was wrong. That continued for 12 years. My mom was scared, i was getting hopeless until i went to the wrong doctor’s office one day by mistake. Told them my fmily doctor sent me here, that he had just called and i was supposed to be there, they all looked confused and went to ask the cardiologist if she would see me since i kept insisting i was supposed to be there. She agreed.
Her name was Dr. Feldman and she has been a lifesaver since i had my “accidental” appointment with her. She saw me, she listened, and after a year, she ended up putting a loop recorder attached to my heart to record what my heart was doing during these episodes. First time i go in to have it checked, they tell me my heart is stopping. Which is why my blood pressure drops suddenly and i have an episode. They also were able to somehow tell that i was having seizures immediately following the black out. Finally, an answer to something. I still get lightheaded everyday and it cost me my job, due to the fact that i was a liability to the company considering i had blacked out at work on several occasions and they didnt want me to hurt myself and then sue them. Which i never would but they still let me go.
It also cost me my marriage. My husband and i divorced last year because he said it had become too much for him to handle …meaning me, and my health problems, were too much for him to handle. So i was left with a 4 year old, a 9 year old, and countless doctor bills, hospital bills, on top of regular bills to pay all by myself….with no job. I lost my spirit. I was fighting so hard for something that wasn’t fighting for me. I gave up. I cried so much. I lost my hope. The only thing that kept me going were those two little boys who needed me.
These funds will be used to get myself a service dog that can alert me before my episodes so i dont hurt myself anymore. Ive broken my nose, my back, my hands, my tailbone…twice. and have had bruises everywhere from blacking out. Ive almost been killed by falling onto sharp objects and from having an episode while in the bathtub. And a service dog would greatly benefit my health. The funds would go to the dogs vet bills, my doctor and hospital bills, and to surgery for a pacemaker! You have no idea what it would mean to me and my boys. My oldest son would finally not have to worry about mommy while hes at school knowing i had a service dog at my side. You dont ever want to hear your child say they couldnt focus in school because they worried about you the entire time.
Its my job to care for my boys,, but i need some support from you guys please. Anything and everything helps even if all you can send is your prayers. Im grateful for it all!