I have also have been fundraising by having car washes and bake sells I have earned $5,000 dollars on my own so far. still need to earn $55,000 more.
This is my little girl Katelyn’s Story
On August 25, 2013 at 9:36 am Katelyn was born. Approximately 4 hours later a doctor walks in and says to me, “Your daughter has a heart problem”.
She was taken to the neonatal intensive care unit leaving her me in tears.I felt the fear of not knowing what would happen to MY new baby girl.
The following morning I meet with an amazing cardiologist who tells me Katelyn has Tetralogy of Fallot and before age 1 she would require a full
heart repair surgery. Tetralogy of Fallot is a rare condition caused by a combination of four heart defects that are present at birth.
These defects, which affect the structure of the heart, cause oxygen-poor blood to flow out of the heart and to the rest of the body.
At the age of two months katelyn is ready for her first surgery. She had a full heart repair and came out of surgery with news of her heart function
being low. After 10 days in the hospital and no improvement the doctors tells me Katelyn needs a 2nd surgery to place a pacemaker. After 21 days in the
hospital she is discharged and required regular monthly then every 3 month appointments. Ten months after Katelyn 2nd heart surgery during a
follow-up appointment it was found that one of the leads from the pacemaker had broken. A 3rd surgery is required to replace the leads to the pacemaker.
Now 2 years later I find out that the patch placed over a leaking valve during her first surgery has continued to leak.
The effect has now caused the left side of her heart to enlarge severely diminishing her heart function.eight more months have passed and Katelyn’s
heart function has significantly dropped. Preparation of a 4th surgery is required for the placement of a biventricular pacemaker.
My hopes were for the biventricular pacemaker and the medication to successfully help the left side of her heart with contracting.
I did ask her cardiologist what our plan would be if the biventricular pacemaker and medication did not work.
They responded with the only one answer…….”heart transplant”.
Now 2 months after the biventricular pacemaker surgery it seems to have failed. Katelyn’s heart functions have gone from 20% to 5%.
Lab results are a concern and have required Katelyn to be emergency admitted into the childrens hospital in Tennessee.
Due to the poor blood circulation of this heart She has developed kidney damage, liver damage, and most recently has developed a blood clot on the
left side of her heart. After 10 days of evaluation by the Children Heart Transplant Team it was recommended that Katelyn undergo the
steps required to be on the heart transplant list.She is currently at Children’s Hospital in Tennessee and this is where she will stay until
a new heart is available.She requires 24 hour care and is undergoing 24 hour IV medication, Milrinone, used to treat those with heart failure.
My daughter is a trooper and has been my little fighter since she was born. It breaks my heart because she has no idea in her 5 years of life
what she has already been through.It’s going to be a long road ahead but this little girl has proven to us she was born to fight. paypal.me/DanaCR86