is Michael when he was admitted in children’s hospital of Alabama when my son was six months old he had his first seizure. Febrile seizure is what they said it was. Michael stayed sick a lot always having a fever and they would come out of nowhere you have a great day playing running around and then ever drop of a hat he had a high grade fever. Doctors will play it off as it’s cold stuff like that because with Michael he’ll be sick and then you take him to the doctor and he’s fine be running playing laughing like nothing was ever wrong and it happened like that every time in August I’ve lost my job due to my health I’m a single mom who worked as a waitress. I’ve been getting seeing specialist myself come to find out my pancreas don’t work so I’m having to take medicine everyday with every single thing that I eat my gallbladder didn’t work they immediately took it out test came back abnormal. I have multiple other health issues and i was supposed to see a neurologist for the parasthesia that started in my head and is now completely all over my body I have two knots in the back of my head im supposed to see a dermatologist and continue seeing my GI specialist They actually sent a letter saying I needed to come in for a recall ultrasound. Because my sons health has been declining it was a Friday and I noticed that my son had a temperature of 99.9 I went ahead and gave him some Tylenol because as his mom I know him and know that it was just going to keep going up that morning at 3:00 Saturday my son went to another seizure I had him in my arms I hurt his passy hit the floor and I can hear him choking I immediately yelled for my step dad i put him on his side not knowing what to do just watching in panic as my baby struggles to get air. Eyes rolled up ,jerking . I was feeling helpless his pawpaw came got him and put some cool water on his feet eventually about 5 minutes later he finally came out of it though he wasnt very coherent and kept making a humming on and off sound. Ambulance finally arrived went to er we live in a small country town we only have a Dollar general and a gas station so when it comes to help they tend to take a little bit more time but time they got there Michael was out of the seizure but he was still not all the way coherent. That’s when it started everyday since that Friday night for nine days straight till he was admitted in children’s hospital my son had six seizures I had great fevers as high as 106.3 that we can control they will go down for maybe 30 minutes to an hour and they will shoot back up there was four implants cost hospital visits regional medical center of Anniston and said it was just a slight ear infection, Tanner of Georgia said that when they did the x-ray they were saying little bitty spot that is not quite bronchitis but there’s nothing antibiotics or anything can do that it would just go away on its own. His pediatrician showed his concerns but discovered the same thing in his chest he gave him a shot of antibiotics and told me he wanted me to come back in 24 hours if he hasn’t improved he was sending him to children’s. But he never did improve me not having a job and being a single parent my car insurance was canceled I couldn’t get my son back to the doctor that day . Day 8 my son is tired he began to get rashes that was a lot of heat in them his eyes begin to turn redish color, he was pale white his eyelids was purplished looking, if you touched him he would say ow. I called his doctor and informed him that he wasn’t better and he needed to go to children’s like he said he was going to send him but because I missed that appointment the day before they told me I had to go up there on my own and in the hospital a special hospital like children’s without a referral or a doctor sending you I was afraid that they would take my son seriously saying the other hospitals didn’t eventually he ended up calling children’s and we went. They immediately admitted my son they all seemed concerned listen to everything I had to say they ran multiple tests multiple blood works and come to find out my 1 year old son had Corona and Kawasaki disease the rheumatologist said that if they would have just did love work they would have seen something was wrong is high blood count position high he said it was all in the blood work we was on date night when we were submitted by day 10 my son was in the hospital and it’s a mom looking at her kid for the ivy in a baby crib and a hospital helpless not knowing what to do if my son was going to die and I didn’t know. They gave Michael a treatment kind of like chemo I guess i would say the Kawasaki disease attach the vessels especially of your heart so they had to bring in the cardiologist and he said that my son’s heart looks great we got to them just in time. My son was in the last stage of Kawasaki disease to get my miracle child who I was never supposed to have a miracle God blessed over my child and he blocked this disease from attacking him in the heart. Now that he’s home he’s great he hasn’t had no seizures other than at night time he will have a fever. Your specialist he still has to see but now I have no way to take him because I have no car insurance and with them canceling that they also canceled my car registration.his doctor’s appointments are over an hour away with best best medical team in Alabama with all the seizures and he now and he has two knots in back of his head as well they want to check and make sure his brain didn’t suffer any damage due to the seizures and they’re going to check them. He complains of headaches and he sleep walks now. I could have had a job I had one supposed to call me but the phone company shut my cell phone off because I can’t afford it I don’t like asking for help I don’t know what else to do I want to go to work and support my son and take him back and forth to his doctors tell him I’m asking me anything anything will help so I can get my car back on the road legally . I will even offer to make payments to pay it back . Michael is 21 months old. My baby needs these appointments and they are coming up really fast. #KeepingMyFaith #Godheals