Thank you for deciding to read my story, that alone means so much to me.
I have tried for so many years to manage this alone so to take this step and ask for help feels so difficult but I am broken, feel like I’m drowning and in a state of panic constantly from worrying about money all the time.
My son became very ill very quickly 7 years ago, He went from a happy, smiley, full of energy 9 year old to a child that could hardly get out of bed for three years, had to have the curtains and windows shut all the time, lights off, hardly any talking or noise as some of his symptoms were a horrendous constant headache for years and zero noise tolerance aswell as constant tinnitus on top of extreme fatigue. It turned out to be m.e also known as chronic fatigue syndrome.
He was hardly out of bed, couldn’t watch tv or computer games etc for over two years as way too much for him.
It is a very underfunded and misunderstood illness that destroys people’s lives and their families.
Its been horrendous for him obviously which has such a knock on isolating effect on the family. I have tried everything over the year’s to help him, racking up a lot of debt to try and get him better, whilst suffering from chronic illness myself and undergoing spine surgery etc in the meantime, not been able to work as he’s needed me 24/7.
Amazingly he is now much better than he was, he is still ill but has quality of life now and able to do things including miraculously sitting his maths and English gcses at home this past few weeks which I can’t explain who fab that is but now my mental health is shattered from constantly being consumed by money worries, I can’t afford to pay for him to go swimming let alone anything else and he deserves so much after what he’s been through, even if it’s just having me in a state where I don’t feel like I’m drowning and in a constant state of panic that I’m going to lose my home and family etc.
I’m sorry I have gone on and on, I haven’t confided in anyone about this and it’s now just pouring out. This feels so wrong asking for help from people I haven’t met but this feels like my last chance to start making a bit of headway the debt so I can start living again and more importantly help my son to get his life back.
Thank you so so much for reading this and if you are able to help no matter how small, I thank you from the bottom of my heart.