where to start… I guess we shall start in 2006.. At this time I’m a single mom with three beautiful children. Doing pretty well for myself. The Fourth of July in 2006, was the day that changed my life so dramatically. I mean mentally it was so hard to be emotionally stable for a good year. You see this day my 1 year old daughter caught on fire from a four year old neighbor child’s sparkler.. I close my eyes today and can still see my child running towards me when flames burst up and over her head, then back out just that quick. Her skin hanging there and the smell.. to shorten the story she was life flighted and spent 10 agonizing months in a hospital fighting for her life with surgery after surgery, as 62% of her body was 3rd degree burns. Most every night I begged and pleaded with God to pls spare my child, I couldn’t make it without her. She finally made it past this and spent another month in another hospital who helped her learn everything all over.. During her hospital stay I had my fourth child. After my daughter, Makya came home from hospital we knew it was a long road ahead. Hundreds of surgery’s and will continue to have surgery’s the rest of her GROWING life.. her skin will not stretch as it should without these surgeries. Some how we made a way to make it back to the hospital hours away for years on end.. I’d lose job after job because let’s be honest no one wants an employee who has to be gone so often. Yet along sell me insurance. Anyhow fast forward to 2016.. we’ve made it this far, kids playing sports, getting good grades, finally, FINALLY, I’ve taught my daughter confidence. She has hated herself for so long and mental doctor after mental doc told me to admit her in mental institutions. I guess so she could feel abandoned on top of everything she already felt. 💔 ok so now, she has this confidence, and I’m feeling great as a mother.
But then, my youngest son, Malachi, suddenly starts falling. And I mean 30/40 times a day. I’m watching him quickly deteriorate. He’s only 10, he’s played football and baseball, everything has always been fine with him. So for yet another 10 agonizing mo the AGAIN, I’m begging and pleading with God, crying myself to sleep. As no doctors can figure out what’s going on. We had a doctor from a children’s hospital make a close guess for a diagnosis of Gillian Bare Syndrome. I knew it was close because his symptoms were gone as long as he had these IVIGs, but when I said to the doc I don’t think your right… they treated us like crap. So I snuck him out dragging him and my other children hours away to another children’s hospital, as I knew my son was dying. He could no longer walk, his muscle mass was disappearing- he has no reflexes- his eye shape changed. Anyhow Christens hospital of Philadelphia saved my child. Gave him the correct diagnosis of Chronic Inflammatory Demylating Polyneuropathy. Basically his immune system is attacking his nervous system. A 10 day plasma transfusion seem to get him back enough strength to get him eventually back to health with minor damage.
During all those months, my daughter Makya, develops alopecia, which was yet ANOTHER devastating thing for her to deal with- she’s been surviving kids torturing for years and this was just more to add to it for her.
Still as a mom, I’m hanging on. Trying my best to give my children the best lives possible. It’s my only goal in life. Job after job, I’m losing it- trying so hard to be strong as I battle depression, and PTSD myself, and with the kids doctor appointments I have no time to get myself help.
Until I was forced to have a surgery. It put me down for MONTHS. I’m so far in debt, I can’t see a way out. I’m trying so hard and it’s like, life chews me up- spits me out- stomps on me- and does it again and again. I pray hard. I try hard. I’m 10,000+ in debt- 2400 behind in rent. Constant shut off notices- car is going to be repo’ed-
I just need a break. So if anyone reads this and your here to just help. Pls consider my family. I know the list is long. I know someone, somewhere has it worse then me.
Just pls help. Anyone. Please.